Doing Social Life by Caring: A study of care within disability settings as understood, conceptualized, and enacted

(preliminary working title)

Primary investigator: Richard Johansson, MSsc.

Grants: The project is funded via a faculty financed position awarded to the Department of Sociology by Uppsala University’s Faculty of Social Sciences.

This dissertation project aims to gain knowledge of the social phenomenon of care, as it is understood, conceptualized, and enacted in disability settings. The project consists of a compilation of studies addressing care from the perspectives of care providers, carers, and care recipients. The project focuses on care as a social phenomenon, that is, as fundamental to how people’s social lives are produced, reproduced, and unfold through interactions in disability settings. The social phenomenon of care has for a long time held a marginal position as object of study within Sociology, and, to some extent, arguably still does. As a consequence, studies pertaining to issues of care as a prerequisite for social life, and possibilities to social life for persons in disability settings who are in need of care in the form of support and services on a daily basis are lacking within sociological research. Theoretically, the project adopts a social constructionist approach attending to the “meaning-making” and “doing” of social life by means of caring. Empirically, the project is situated in a Swedish context with a focus on care in disability settings within the jurisdictional framework of the Act (1993:387) Concerning Support and Services for Persons with Certain Functional Impairments.

Advisors: Associate Prof. Ulla Hellström Muhli